Ethical side of decision-making on palliative care to a child with congenital heart disease associated with frontonasal dysplasia

In the practice of pediatric cardiology, situations are possible when a child with congenital heart disease cannot be subjected to radical or even hemodynamic surgery. As rule, such severe defects combined other genetic anomalies, which ultimately lead palliative status newborn. This situa­tion is serious ethical and psychological challenge for medical workers in both antenatal postnatal periods. proposed article, we present case disease, was part frontonasal dysplasia due ZSWIM6 gene mutation. observation illustrates number problems, difficult decisions communication questions that typical life situation as birth terminally ill child. The example illustrative general problems disabling can encountered cardiologist. From broader perspective, uncertainty an inevitable component decision making informing patient (his legal representatives).